Here are other local support groups we're aware of. If you know of any that should be added to this list, please send the information to Debbie Hart (ReferralList@dfwcfids.org).
Other Area Support Groups
| Pat Charlton (FM group) Mesquite Community Hospital 2516 Independence Mesquite, TX 75150 (972) 270.1984 pac53@airmail.net |
Margaret Hersh (FM group) (call for meeting location) 2113 Fairmont Dr. Flower Mound, TX 75028 (972) 724.8805 howardhhersh@aol.com |
Lois Holguin (FM group) Arlington Memorial South 939 Grasswood Arlington, TX 76017 (817) 557.2842 fmwg1@yahoo.com |
| Lorna Shepherd (FM clinic) Health South Hospital 2124 Research Row Dallas, TX 75235 (214) 904.6499 or (214) 904.6100 |
Brenda Marcus (Chronic Pain) (call for meeting location) 7634 Meadowhaven Dr. Dallas, TX 75240 (972) 233.5648 minky02@sbcglobal.net |
Sandy May (Chronic Pain group) Medical Center of Plano Plano, TX (469) 467.9883 xsmay@comcast.net |
National Support Organizations for CFS/CFIDS and FM/FMS
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American Association of CFS (AACFS) http://www.aacfs.org Professional association of clinicians and researchers. Meet yearly to discuss new thoughts, treatments, etc. Great medical and research information on CFIDS/ME. |
CFIDS Association of America http://www.cfids.org Extensive information and links on CFIDS, disability, advocacy, youth with CFIDS, research, media coverage, etc. Also available: 800.442.3437 (voice mail, message line), 704.365.2343 (resource line, real people). The CFIDS Association |
Chronic Syndrome Support Association http://www.aacfs.org FMS, CFIDS, GWS, MCS, MPS, information and links. A wide-range of information by many who have had these illnesses for quite some time. |
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Co-Cure http://www.co-cure.og The name "Co-Cure" stands for "Co-operate and Communicate for a Cure." Extensive information and links on CFIDS and FMS. This site has a "Good Doctor List", a support group search, an outstanding email news service, posts are archived and searchable, disability discussion list, list of discussion groups/chat rooms/bulletin boards. |
FibroHugs http://www.fibrohugs.com FibroHugs' is a place where people with Fibromyalgia (a.k.a. - Fibromites) can find understanding, knowledge, and support in their daily battle with this painful disease. They try to help all understand the effects of this illness. You can also create your own "MyFibroSite.com" site (for free) here. |
Fibromyalgia Network http://www.fmnetnews.com Great site and the Fibromyalgia Network also publishes an outstanding quarterly newsletter that provides patients and health care providers with the latest information on FMS and CFIDS. Call 1.800.853.2929 to subscribe. |
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ImmuneSupport.Com http://www.immunesupport.com A great source of both FM and CFIDS information from doctor lists and support groups to an online community and a great resource for the latest articles and abstracts. Nutritional supplements are sold here also with part of every sale going towards funding research. ProHealth also offers a mailing list from this site. |
ME/FMS Advocacy and Research Forum
http://www.ncf-net.org
This ME/FMS ADVOCACY AND RESEARCH FORUM for those sufferers who wish to learn more about these two issues. |
Men Surviving Fibromyalgia http://devoted.to/mensurvivingfms Good site! By men, for men! Helpful information and a place for men to turn to other men for help. |
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Men With Fibromyalgia http://www.menwithfibro.com Another excellent site for men by men but not exclusively for men only! An informative and helpful site. It also offers software directed specifically at symptom-tracking. Looks good; offers a free trial version - will let you know! |
National CFIDS Foundation http://www.ncf-net.org CFIDS information and limited links. |
National Dysautonomia Research Foundation http://www.ndrf.org Dysautonomia - dysfunction of the autonomic nervous system (ans malfunction). An informative and helpful site. Lots of useful reources |
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National Fibromyalgia Partnership, Inc. http://www.fmpartnership.org FMS information and links. |
National Fibromyalgia Research Association http://www.nfra.net Another excellent site with FMS information and links. They also have a very cool maroon/purple & pink wristband available as of Spring 2005. |
National FMS - CFS Database http://www.fmscfs.org Researchers say it's hard to find patients for their studies; recruiting costs them too much time and money, making some studies prohibitively expensive or impossible. By registering in the central database you make it easy for research to happen, to make more out of the dollars being spent. Researchers will receive your answers to their questions but will never have access to your contact information, including your email address. |
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P.A.N.D.O.R.A. http://www.pandoranet.info Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy. Their goals are to raise awareness, provide support and educational resources, establish partnerships, support research, encourage the creation of empowerment groups, and organize conferences. These goals assist patients with Neuroendocrineimmune Disorders and their families lead productive and fulfilling lives. |
San Diego Chronic Diseases http://www.sandiegocd.org Their mission is to educate and support those with CFS or Myalgic Encephalopathy (ME), Fibromyalgia, and other Chronic Diseases. They strive to be a credible and effective resource to empower the citizens of San Diego with Chronic Diseases and to improve their lives through education, advocacy, communication networks (newsletters, teams, & website), and community participation. Non-members are always welcome at their monthly meetings. There are NO membership dues. Welcome to our story. A San Diego work-in-progress. |
Spondylitis Association of America
http://www.spondylitis.org
Spondylitis (pronounced spon-d-lie-tiss) is the name given to a group of chronic or long lasting diseases also called Spondyloarthritis or Spondyloarthopathy (spon-d-low-are-throp-ah-thee). These are forms of inflammatory arthritis that primarily affect the spine, although other joints and organs can be involved. Spondylitis, unlike many other rheumatic conditions, affects young adults. Prominent researchers have stated that AS affects at least 1 in every 200 adults (approximately 0.5%) making it as common as rheumatoid arthritis. Lots of great information here and a medical dictionary too! |
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