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Referral List

(Local & National Healthcare Professionals, Attorneys, & Area Support Groups)

 

The Latest

Research Study for Fibromyalgia Pain — Participants Still Needed

Acupuncture relieves symptoms of fibromyalgia, Mayo Clinic study finds

Oxidative stress levels raised in CFS & associated with symptoms

Placebos trigger an opioid hit in the brain

What is the Best Therapy for Reversing Fibromyalgia Symptoms?

Updates: Genes and Chronic Fatigue Syndrome

Chronic fatigue bacterium

Bone Tired: Sufferers of the mysterious ailment must cope with a host of challenges

The Master Antioxidant — Glutathione (GSH) — May Revolutionize the Treatment of Disease

The definition of disabling fatigue in children and adolescents

Chronic fatigue is not all in the mind

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Cheney Seminar Highlights

CFS & Cardiac Issues (Apr05, Cheney)

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Here are other local support groups we're aware of. If you know of any that should be added to this list, please send the information to Debbie Hart (ReferralList@dfwcfids.org).

Other Area Support Groups

Pat Charlton
(FM group)
Mesquite Community Hospital
2516 Independence
Mesquite, TX 75150
(972) 270.1984
pac53@airmail.net
Margaret Hersh
(FM group)
(call for meeting location)
2113 Fairmont Dr.
Flower Mound, TX 75028
(972) 724.8805
howardhhersh@aol.com
Lois Holguin
(FM group)
Arlington Memorial South
939 Grasswood
Arlington, TX 76017
(817) 557.2842
fmwg1@yahoo.com
Lorna Shepherd
(FM clinic)
Health South Hospital
2124 Research Row
Dallas, TX 75235
(214) 904.6499 or
(214) 904.6100
Brenda Marcus
(Chronic Pain)
(call for meeting location)
7634 Meadowhaven Dr.
Dallas, TX 75240
(972) 233.5648
minky02@sbcglobal.net
Sandy May
(Chronic Pain group)
Medical Center of Plano
Plano, TX
(469) 467.9883
xsmay@comcast.net

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National Support Organizations for CFS/CFIDS and FM/FMS

American Association of CFS (AACFS)
http://www.aacfs.org

Professional association of clinicians and researchers. Meet yearly to discuss new thoughts, treatments, etc. Great medical and research information on CFIDS/ME.

CFIDS Association of America
http://www.cfids.org

Extensive information and links on CFIDS, disability, advocacy, youth with CFIDS, research, media coverage, etc. Also available: 800.442.3437 (voice mail, message line), 704.365.2343 (resource line, real people).

The CFIDS Association
P.O. Box 220398
Charlotte, N.C. 28222-0398

Chronic Syndrome Support Association
http://www.aacfs.org

FMS, CFIDS, GWS, MCS, MPS,  information and links.  A wide-range of information by many who have had these illnesses for quite some time.

Co-Cure
http://www.co-cure.og

The name "Co-Cure" stands for "Co-operate and Communicate for a Cure." Extensive information and links on CFIDS and FMS. This site has a "Good Doctor List", a support group search, an outstanding email news service, posts are archived and searchable, disability discussion list, list of discussion groups/chat rooms/bulletin boards.

FibroHugs
http://www.fibrohugs.com

FibroHugs' is a place where people with Fibromyalgia (a.k.a. - Fibromites) can find understanding, knowledge, and support in their daily battle with this painful disease. They try to help all understand the effects of this illness. You can also create your own "MyFibroSite.com" site (for free) here.

Fibromyalgia Network
http://www.fmnetnews.com

Great site and the Fibromyalgia Network also publishes an outstanding quarterly newsletter that provides patients and health care providers with the latest information on FMS and CFIDS. Call 1.800.853.2929 to subscribe.

ImmuneSupport.Com
http://www.immunesupport.com

A great source of both FM and CFIDS information from doctor lists and support groups to an online community and a great resource for the latest articles and abstracts.

Nutritional supplements are sold here also with part of every sale going towards funding research. ProHealth also offers a mailing list from this site.

ME/FMS Advocacy and Research Forum http://www.ncf-net.org

This ME/FMS ADVOCACY AND RESEARCH FORUM for those sufferers who wish to learn more about these two issues. 

Men Surviving Fibromyalgia
http://devoted.to/mensurvivingfms

Good site! By men, for men! Helpful information and a place for men to turn to other men for help.

Men With Fibromyalgia
http://www.menwithfibro.com

Another excellent site for men by men but not exclusively for men only! An informative and helpful site. It also offers software directed specifically at symptom-tracking. Looks good; offers a free trial version - will let you know!

National CFIDS Foundation
http://www.ncf-net.org

CFIDS information and limited links.

National Dysautonomia Research Foundation
http://www.ndrf.org

Dysautonomia - dysfunction of the autonomic nervous system (ans malfunction). An informative and helpful site. Lots of useful reources

National Fibromyalgia Partnership, Inc.
http://www.fmpartnership.org

FMS information and links. 

National Fibromyalgia Research Association
http://www.nfra.net

Another excellent site with FMS information and links. They also have a very cool maroon/purple & pink wristband available as of Spring 2005.

National FMS - CFS Database
http://www.fmscfs.org

Researchers say it's hard to find patients for their studies; recruiting costs them too much time and money, making some studies prohibitively expensive or impossible. By registering in the central database you make it easy for research to happen, to make more out of the dollars being spent. Researchers will receive your answers to their questions but will never have access to your contact information, including your email address.

P.A.N.D.O.R.A.
http://www.pandoranet.info

Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy. Their goals are to raise awareness, provide support and educational resources, establish partnerships, support research, encourage the creation of empowerment groups, and organize conferences.

These goals assist patients with Neuroendocrineimmune Disorders and their families lead productive and fulfilling lives.

San Diego Chronic Diseases
http://www.sandiegocd.org

Their mission is to educate and support those with CFS or Myalgic Encephalopathy (ME), Fibromyalgia, and other Chronic Diseases. They strive to be a credible and effective resource to empower the citizens of San Diego with Chronic Diseases and to improve their lives through education, advocacy, communication networks (newsletters, teams, & website), and community participation.

Non-members are always welcome at their monthly meetings. There are NO membership dues. Welcome to our story. A San Diego work-in-progress.

Spondylitis Association of America http://www.spondylitis.org

Spondylitis (pronounced spon-d-lie-tiss) is the name given to a group of chronic or long lasting diseases also called Spondyloarthritis or Spondyloarthopathy (spon-d-low-are-throp-ah-thee). These are forms of inflammatory arthritis that primarily affect the spine, although other joints and organs can be involved. Spondylitis, unlike many other rheumatic conditions, affects young adults. Prominent researchers have stated that AS affects at least 1 in every 200 adults (approximately 0.5%) making it as common as rheumatoid arthritis.

Lots of great information here and a medical dictionary too!

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