DFW Lighthouse

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DFW Lighthouse
Volume 2, Number 4, October 2000

Related Disorders in
CFIDS/FMS

Truth About Sugar,
Aspartame and Stevia

Transdermals for Pain:
Maximize the Relief,
Minimize the Side Effects

Nutrition Advisor
Immunocal at cost!

For Your Bookshelf

Don't Give Up!

Chinese Energetic
Medicine Technique

In The Media

Job Accomodations
for FMS

Federal Disability
Website

Educate Your Doctor
About FMS

CFIDS, Hepititis C
or Pesticide Poisoning?

Spiritual Journey
Meetings Suspended

Nominations Open
for Board of Directors

One to One
It's Helped Me!

CFS State of the
Science Meeting

EI/MCS APARTMENT FOR RENT

Meeting Information

CFS State of the
Science Meeting

How To Contact Us

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EI/MCS APARTMENT FOR RENT

For rent: one bedroom apartment in an EI/MCS safe home. (Environmental Illness / Multiple Chemical Sensitivity). HUD section 8 approved. EI safe country dÈcor available at no cost. $300 plus half of utilities and TV fee. Linens, dishes, cookware and small appliances available for additional $25. Lots of storage in apartment, plus 1/2 detached garage. Private entrance with covered porch, patio, yard with shade trees. All electric. Large refrigerator/freezer. Has AC, but seldom needed due to low humidity and good breezes. Lowest temps in Texas ñ 4668 foot elevation. Located on the edge of Marfa, a small town of 2400. Great neighbors. No mold or pesticides. No industry or farming in the area. Lots of EI/MCS folks. Organic food available at grocery store and whole sale co-op with 6,000 items, even organic clothes. Call 915-729-4916, 8 am to 8 pm CST. Let it ring at least twelve times. Large yard - usually outside.

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Shop Online with I-Give

Shop online and a percentage of your purchases can be donated to our support group. IGive has over 250 merchants who donate up to 12% of your purchase to your designated cause. Of special note is that one of the largest sources of supplements for CFS/FM (immunesupport.com) donates 7.5% of your purchase to the cause of your choice.

You'll find sites featuring:
heath
books
clothing
lawn and garden
groceries/gourmet
toys
automotive
computers/software
pets
electronics
office supplies
music/video

You can shop by first going to IGive clicking on the link to the merchant, and forwarding a copy of your email receipt to orders@igive.com. Or you can fill out a form (with privacy protections) and download a small program that will open a window on any site you visit directly that is listed at IGive - and you won't have to forward and email receipt for your cause to receive it's donation.

Check out IGive, list "CFS/FM Support Group of DFW" as your cause, shop away and let the merchants donate to our group!

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How to Contact Us
The CFIDS/FMS Support Group of DFW is headed up by

Carol Sieverling
513 Janann Street
Euless, Texas 76039

Submissions may be sent electronically to Newsletter Editor.
We reserve the right to edit all submissions.
You may contact Carol at the address above.
All rights reserved.
Copyright 1999 and 2000 by the CFIDS/FMS Group of DFW.

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CFS State of the Science Meeting

The CFS State of the Science Meeting was held in Washington, DC in October. If you missed it, you can still get in on the information:

Tapes are Available
$120 for the set or $12 dollars a piece; contact for a description of what is on each tape.

Audio Transcripts, Ltd.
3660-B Wheeler avenue
Alexandra, Virginia 22304
atltapes@aol.com
1-800-338-2111
Fax 703-370-5162

Power Point/Slides of the presentation are available at:
http://www.cdc.gov/ncidod/diseases/cfs/cfshome.htm

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Chinese Energetic Medicine Technique

River, who has been a sufi since 1972, has set up a website to teach people a Chinese energetic medicine technique call Chi Kung. He claims many people with chronic illnesses have benefited greatly from this meditative exercise that reduces poins and speeds the healing process. It involves moving your awareness through your body in set patterns for 27 minutes twice a day. Those interested in Eastern Medicine and/or meditation may want to check out his website. Complete instructions are available on the site at no charge. He hopes to establish an online group of people practicing this technique to share experiences and encourage one another.

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Educate Your Doctor About FMS

A new article in the October issue of American Family Physician goes a long way in helping dispel the myths about FMS in language that your physician will find credible. Print out the article and take it to your doctor.

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CFS, Hepatitis C or Pesticide Poisoning?

The Guardian, a UK newspaper, ran an article on July 25th about Hepititis C. One study found that one person in 100 has Hepititis C, most are undiagnosed, and the symptoms are very similiar to CFIDS/ME. The author states "up to 40% of those diagnosed with Chronic Fatigue Syndrome could actually have Hepatitis C." Read the full story online..

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Spiritual Journey Meetings Suspended

Despite a great deal of interest, attendance has been minimal at our spiritual journey meetings. Like so many things, people want and intend to come, but the energy is just not there. And many members use what energy they do have to participate in their own faith communities or practices, which is as it should be. We will try to have at least one regular meeting each year related to spirituality and chronic illness, as we have done in the past. If someone else wishes to try facilitating these monthly meetings, please contact Carol.

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Nominations Open for Board of Directors

In January of 2001 the Board of Directors will hold its annual meeting to review the financial report for 2000, approve the budget for 2001, conduct any new business, and elect new Board Members. If you would like to nominate yourself or someone else (with their permission), contact one of the directors listed here. We welcome and encourage those with new ideas and an interest in becoming involved to step forward. All organizations need infusion of "new blood" to stay healthy!

The Board of Directors began as an informal Advisory Board in 1998. It became the Board of Directors when we incorporated, which was part of the process of becoming a 501 (c) 3 non-profit organization. Our by-laws call for at least three, but no more than seven directors.

Our leader, Carol Sieverling, consults the Board frequently ã usually when issues arise that are not covered by current policy or involve expenditures that are not in the budget.

In The Media

"Focus on the Family" has scheduled a series on CFS for October 16, 17 and 18. The Christiam Radio Show featuring Dr. James Dobson airs each day at 10 a.m. and again at 6:30 p.m. on KCBI, 90.0FM

The National Public Radio interviewed award winning Jazz pianist Keith Jarrett on the program "Fresh Air". Jarrett spoke about his struggle with CFIDS, which left him unable to perform, play or even listen to music for two years. He can now maintain a limited performing schedule. A transcript can be found at http://www.immunesupport.com/ (Enter "Jarrett" in the search window.)

The New York Times and the Washington Post have both published recent articles on FMS. The Post article can be viewed at http://washingtonpost.com/wp-dyn/articles/A38884-2000Jul25.html. The Times article is at http://www.nytimes.com/library/national/science/health/080100hth-brody.html. You have to register at the site but it is free. Thanks to Co-Cure for this info.

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Thanks Again!

Many thanks to the amazing women at Emmanuel Presbyterian Church who so willingly take care of the folding, stapling, and labeling of this newsletter.

Many thanks also to Harris Methodist HEB Hospital for printing and mailing this newsletter.

Without you this publication would not be possible!

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The DFW Lighthouse Credits

Published quarterly, the DFW Lighthouse strives to inform its members and the public about a variety of topics related to chronic Fatigue Syndrome and Fibromyalgia and provide information on advocacy issues. The CFS/FM Support Group of DFW does not endorse particular products or services, and the ideas expressed the in the DFW Lighthouse are strictly those of the authors or the quoted individuals. The CFS/FM Support Group of DFW, and the DFW Lighthouse assume no liability for any medical treatment or other activity undertaken by readers. For any medical advice, consult your health-care provider.

The DFW Lighthouse Credits
Managing Editor and Production Coordinator
Carol Sieverling
Managing Editor and Designer
LJ Fidler
Technical Editor and Editorial Researcher
Jackie Burns
Web Mistress
Deborah Slaton

Submissions for the DFW Lighthouse may be sent electronically to Newsletter Editor. We reserve the right to edit all submissions. You must have permission before reproducing any material from the DFW Lighthouse. This may be obtained by contacting Newsletter Editor or mail to Newsletter Editor, 513 Janann Street, Euless TX 76039. Copyright © 2000 by The CFS/FM Support Group of DFW, http://www.dfwcfids.org/. All rights reserved.

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Update 11/28/2000. For questions or comments concerning this site, please contact webmaster.

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