It's Helped Me!
The following is a forum for sharing experiences and
ideas. No endorsement of any product, medicine or treatment by the support
group is intended. Consult your health care practitioner before beginning
any new treatment.
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It's Helped Me!
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Hypnotherapy
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One FMS patient reports significant relief from pain through Hypnotherapy.
With hypnotherapy and EFT (Emotional Freedom Techniques), she feels better
than she has in ten years. Her hypnotherapist, Edward Joseph, can be reached
at 827-589-7407.
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Herbalist
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Like many of us, Toja's pain and other symptoms led her from doctor to
doctor without any significant relief. She was finally diagnosed and experienced
some benefit some benefit from "strain counter-strain therapy." However,
it has been herbs that have helped her recover. She went on a complete
program designed by her herbalist. One year later she was free of pain.
It has been five years now, and she considers herself free of FMS. Tonja
has since become a Certified Natural Health Professional. You can reach
her at 817-485-7239 or at toniawells@aol.com.
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Switching Pillows
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Susan, who has CFIDS/FMS, reports that she has felt remarkably better since
switching pillows! She discovered this while staying with relatives. They
had big, fat pillows on the guest bed. She slept on her back with her head
tipped forward slightly, chin toward chest. Since she never sleeps on her
back, she was sure she wouldn't be able to sleep well.
To her surprise, she "awoke the next morning feeling quite good. The
mind fog was gone. I felt energetic. Every morning since then, I have had
the same result. I continue to feel much more alive. That's the best way
to explain it. I can THINK, I feel like DOING THINGS, COOKING, GOING PLACES,
LAUGHING, like my personality has come back. Like I am no longer half dead."
You may not get the same results, but unlike many treatments, this one
costs very little! And it acutally makes sense, given the occurence of
Cervical Stenosis and the Chiari Malformation in FMS/CFIDS, in which the
brain stem or upper portion of the spinal cord is compressed. Susan believes
she may have the Chiari malformatio, since tipping her head back has always
caused discomfort. |
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Pine Cone Extract
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Pine Cone Extract. (recommended by Dr. Cheney in our newsletter) Mary reports that Judy Griffin, PhD, makes pine cone
extract here in the Metroplex. It is $35 an ounce plus $6.00 shipping.
(It's $60 an ounce elsewhere.) Dr. Griffin makes her own products and has
an excellent reputation for her knowledge and products. She has over 20
years of clinical and hospital experience, and has taught at local colleges.
She can be reached at 817-293-5410, fax: 817-293-3213 or email: petitefl@flash.net.
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Pest Control Without Chemicals
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Mary reports that you can get rid of termites, fleas, fire ants, etc. with
beneficial nematodes instead of chemicals. They are available locally or
from Gulf Coast Biotic
Technology in Huntsville, TX. 1-800-524-1958, ask for Ginger.
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FMS Pain Relief
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Dinah has found significant FMS pain relief from "Maritime Prime", made
by Health Kaire. It contains Pycnogenol in an enzyme delivery system, other
antioxidants, and spirulina. (1-800-524-7348 or kaireint.com).
Dinah has found walking, reducing stress, and quality sleep essential to
her improvement. The
Fibromyalgia Relief Handbook has been very helpful to her.
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Butter/Margarine Replacement
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Mary found "Spectrum
Spread", a healthy substitute for butter and margarine that's non-hydrogenated,
trans fat, dairy, and cholesterol free. One is made with canola oil, another
with olive oil. Whole Foods and Healthy Approach carry these products.
Spectrum also makes a similar organic, all-vegetable shortening that can
be used for baking or cooking.
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Hepatitis C and CFIDS
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Susan, who was infected with Hepatitis
C by a blood transfusion years ago, knows that it's possible to have
both Hepatitis C and CFIDS. Some patients are misdiagnosed with CFIDS and
later learn they have Hepatitis C. Others find that Hepatitis C seems to
be the trigger for their CFIDS. Hepatitis C can go undetected for years.
Early symptoms may be very mild and flu-like. They can include fatigue,
nausea, vomiting, loss of appetite, fever, weakness, headaches, and abdominal
pain. Most people do not have jaundice - yellowing of the skin and eyes
in the early stages. For more information contact the Hepatitis
Foundation International, 1-800-891-0707.
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Pain Relief with Embrel
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Kay wrote that a dear friend in his 50's could hardly walk due to severe
Arthritis.
His doctor gave him a new drug called Embrel. Her friend now has no symptoms
and feels 18 years old again. He and his wife are even taking Texas Swing
Dance lessons!
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Antibiotics: Dangerous Side-Effect
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Judy wants others to know about a rare but serious side effect of long
term antibiotic use: progressive tendonitis leading to torn tendons/ligaments,
particularly with antibiotics in the Cipro group such as Doxycycline.
Judy took Doxycycline and had three weeks of progressive tendonitis before
a ligament in her hip tore during sleep. She has been in a wheelchair for
a month and is in the worst pain of her life, worse than her migraines
or FMS. She and her doctor never knew this could occur. Those who are aware
of it can stop the drug or switch drugs at the first sign of pain. (Thanks
to co-cure.org.)
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