For The Friends and Family of Those
With CFIDS or FMS
There is so much we want to tell you, about how we feel, about how we could not manage without you, about how our life has changed . . . So much of the time we do not have the words to let you know what we are thinking. The words are trapped in our brains that will not function properly.
So, this page is dedicated to you. All those that love us and support us every day. We will be adding more and more. Please be patient with us.
A new member sent this email to all of her friends
An Open Letter to Those Without CFIDS
A Guide for Kids of Parents w/ CFS
Rethinking Usefulness
Guest feature writer Susan Dion offers a new perspective on how to cope with the guilt and loss associated with CFS.
I Feel Ashamed . . . I'm Sorry
What Your Friend or Family Member with CFS Needs You To Know
A new member sent this email to all of her friends
A new member named Donna sent the following email to all of her friends (and some family) that are online, sharing the link to our website with them, particularly calling their attention to the "Friends and Family" section. Donna said that phone calls and emails began coming in later that day. She said, "Most had not had time to peruse the site, but felt the note was special and felt it nice to be included in the group. Most indicated they would include it in their "favorites" so they would have it readily available to read as they had time." I thought Donna's email was well written and that others might benefit from it. I share it with her permission.
Carol
Donna wrote:
I am enclosing a website address at the closing of this e-mail for those of you interested. Each of you receiving this e-mail is considered a friend.
Some of you are frustrated with me these days, some of you think I have gone crazy or lazy, some of you just do not understand my moods, or maybe unwillingness to seem to fully be there for you if you need me.
The website explains various things regarding my illness. I have Fibromyalgia and Chronic Fatigue Syndrome (which they refer to as CFIDS). I am sort of double whammied with ADD but that is a separate issue I am dealing with and not included in this.
I am sending the basic address of the entire site because it explains the basic disorders. But mostly, for those of you that would like to take the time, there is a "box" to "Family and Friends". It helps to put into words what I often cannot.
No one is, of course, obligated to even go to the site. I am just sending in case you are interested. I try not to discuss or complain about this situation but it is unmistakenly there and I know it shows at times, whether in a form of hyperness, moodiness, depression or sometimes even just quietness. For those of you that know Ken, if you read this, you will no doubt understand that it affects him also...it is a family illness.
So, for any of you who possibly feel I have slighted you or just treated you "differently" at times, maybe it will help. I appreciate the time any of you take to understand.
Love you all
Donna
Easy search for the Amazon.com site. Check out their books and music.
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Update 01/09/05. For questions or comments concerning this site, please contact Lori or Deborah.
Copyright © 1999-2005 by the CFIDS/FMS Support Group of DFW. All rights reserved.
Some of the graphics were by Lolis Golden Pages and Hee Yun's Graphic Collection; they are no longer found on the web.