CFIDS and FMS Support Group of DFW

CFIDS and FMS Support Group of DFW Disability Information

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New Tools Help People Complete Disability Form

Are you or someone you know planning to file for disability benefits? There's a new tool to help. When an adult applies for disability benefits, you complete a Disability Report (SSA-3368). The form helps obtain information about an applicant's condition, and is the key to obtaining medical records. Now you can get tips right over the Internet on how to best complete the 3368. Just click on any section of the form and you'll get a "plain language" explanation of what we're looking for, why we need the information, and how your answers help us decide if you can get disability benefits. This new tool is your key to having the Disability Report completed before your appointment. To take a look, visit http://www.ssa.gov/disability/3368/3368guideframe.htm

(Thanks toco-cure.org for alerting us to this information.)

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Half the Planet

The goal of Half the Planet is to be the leading supplier of comprehensive, reliable information, ideas, products and services for the entire adaptation community, including people with disabilities, families, friends, co-workers, employers, manufacturers, distributors, service providers, educators, legislators, regulators and advocates. There is some great information here about the Americans with Disabilities Act, too. Lots of great FREE resources here!

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WebAble

A web site for disability-related internet resources. The accessibility database lists hundreds of internet based resources on accessibility. The site's goal is to stimulate education, research, and development of technologies that will ensure accessibility for people with disabilities to advanced information systems and emerging technologies.

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Disability Access Information and Support (DAIS)

This is an important resource to the higher education community, providing a menu of services for those concerned with disability and access in higher education. Institutions and organizations can contract for help from DAIS, in the person of Jane Jarrow, Ph.D., for a variety of services. The growing list of DAIS publications includes resource materials to assist in interpreting legal mandates, reviewing policies and procedures, and understanding the philosophical underpinnings of providing quality service to people with disabilities in the post secondary environment.

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Disability Access Information and Support (DAIS)

Disability Access Information and Support (DAIS) is an important resource to the higher education community, providing a menu of services for those concerned with disability and access in higher education. Institutions and organizations can contract for help from DAIS, in the person of Jane Jarrow, Ph.D., for a variety of services. The growing list of DAIS publications includes resource materials to assist in interpreting legal mandates, reviewing policies and procedures, and understanding the philosophical underpinnings of providing quality service to people with disabilities in the post secondary environment.

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Disability Guidebook Revised

The National CFIDS Foundation has revised their guidebook on disability and it is now available for $5.00. 

They are also offering the fifth version of "Therapy of Chronic Chlamydial Infections Including Their Associated Porphyria and Vitamin B12 Deficiency." It is free with a request to the Foundation along with a self-addressed (legal size) stamped envelope (33¢): 

The National CFIDS Foundation;
103 Aletha Rd.
Needham, MA 02492

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Disability Resources

If disability is or could become a concern, information is a powerful weapon. Some internet websites that may interest you are CFIDS for their Disability Information or for information, links, a good lawyer list, and an email discussion group with others going through the disability process. 

The Department of Health and Human Resources recently established the first-ever federal resource center for women with disabilities as part of the National Women's Health Information Center ã a gateway to federal and private sector women's health publications and organizations. For more information, call 1-800-994-WOMAN or go to their website

The National Organization of Social Security Claimant's Representatives website has resource information and answers to frequently asked questions. The Social Security Advisory Service, allows you to ask questions at the site.

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Federal Disability Website

A new website, "http://www.disabilityinfo.gov/", created by the Presidential Task Force on the Employment of Adults with Disabilities, will serve as a one-stop information source on federal programs, services, and resources of interest to Americans with disabilties, their families, employers, and service providers.

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Job Accomodations for FMS

A helpful government document entitled "Accommodating People With Fibromyalgia" can be found at http://www.jan.wvu.edu/media/Fibro.html (Link not currently active). It was produced by "The President's Committee on Employment of People with Disabilities Job Accommodation Network". Thanks to Co-Cure for this information.

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Sick and Tired

Chronic Fatigue Syndrome and Fibromyalgia patients are sick and tired ... of explaining, that is. A host of symptoms makes these chronic conditions hard to diagnose, but a recent Social Security Administration ruling may make it even harder. Guide Lisa Lorden explains at the following address: http://chronicfatigue.about.com/library/weekly/aa092299.htm.

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Social Security Disability Newsletter

Stan Denman, a local lawyer specializing in social security disability, has begun publishing a newsletter on social security disability for clients, former clients, or anyone interested in SSDI. Topics include information on the assessment process, improving your chances, changes within the SSA that may affect your continued eligibility, the review process, and return-to-work issues. To receive complimentary issues, contact Stanley Denman & Associates at 214.219.7288.

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Update 01/09/05. For questions or comments concerning this site, please contact Lori or Deborah.

Copyright © 1999-2005 by the CFIDS/FMS Support Group of DFW. All rights reserved. 

Some of the graphics were by Lolis Golden Pages and Hee Yun's Graphic Collection; they are no longer found on the web.