CFIDS Associations and Support Groups
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CFIDS Associations and Support Groups |
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Make A Difference: Join C-Act and/or CPR
C-ACT stands for CFIDS Activists. C-Act members receive advocacy alerts by email and, less frequently, regular mail. They are informed of pending legislation or some other action and given the names and addresses of the particular government officials to whom they should write. To join send an email or use the address below.
CPR stands for CFIDS Public Relations team and its members are sent alerts about media coverage of CFIDS. The story or article is reprinted or summarized and a sample letter of thanks or a request for further, more appropriate coverage is included, along with the name and address. To join send an email or use the address below.
CFIDS - Ken Lassesen - site operated by Ken Lassesen
CFIDS, M.E., and Chronic Fatigue Syndrome Information Index - site by Mary Schweitzer
The CFIDS Report - CFS News and Commentary - site by Craig Maupin (another excellent site)
CFS DAYS Index Page; CFS/FMS References - humorous, cartoons about life with CFIDS
CFS Phoenix Main Menu - site by Cort Johnson
CFSupport - Northern Virginia CFS/FMS Support Group
CFS/FMS Support Group of San Antonio - currently without a support group leader but meeting occasionally and still have a newsletter
Chronic Fatigue Syndrome Association of Long Island
David S Bell, MD | Lyndonville News - site & newsletter by Dr. David S. Bell
Dr. Sharp - Chronic Fatigue and Immune Deficiency Syndrome - Taking a New Perspective on CFIDS - site by Dr. Larry Sharp
History of Myalgic Encephalomyelitis (M.E.) / Chronic Fatigue Syndrome (CFS) - a good history of CFS
M.E. Support - run by Louise Sargent, Director of M.E. Support (louise@mesupport.bigstep.com)
New Jersey Chronic Fatigue Syndrome Assoc. CFS CFIDS Support Group - a very active group who is also fortunate to have many able-bodied spouses, partners, etc. helping.
PANDORA - a Florida organizations run by Marla McKibben and Rebecca Artman (among others) working to assist solid clinical expertise in CFS in their state.
Welcome to MERGE - the ME Research Group for Education and Support
San Diego Chronic Diseases - a group with many illnesses included
Shasta CFIDS - a non-profit, self-help support group for those with Chronic Fatigue Syndrome, Fibromyalgia Syndrome, Multiple Chemical Sensitivities, Mycoplasma, and related conditions. We currently serve a five county Northern California area. (Sharon Briggs cybermom@shasta.com)
South Carolina S.G. - Home - Foothills Fibromyalgia/CFIDS Support Network Homepage, near Spartanburg, South Carolina which is located 20 Miles south of the North Carolina border.
Wisconsin Chronic Fatigue Syndrome Association - hosted the '04 AACFS; run by Pat Fero, among others.
Easy search for the Amazon.com site. Check out their books and music.
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