Update on the Million Letter Campaign

(05/18/05)

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On May 1, 2005, FMS/CFIDS/ME/MCS sufferers from all over the world sent letters to media and government addresses listed on this site in an effort to increase awareness of this illness in time for International Fibromyalgia Awareness Day on May 12. Below are some TANGIBLE results from our efforts.....

 

Advocacy Activities Page

Main Advocacy & Awareness Page

  1. Pattie Caprio, MLC Founder, stated: "I received two calls today (May 9, 2005) from the media. One was from Liz Frillici, Senior Supervising Producer for the Montel Williams show, and the other one was from FOX TV. Ms. Frillici was not too happy about the massive amounts of mail and asked why we didn’t just send one letter to her. I explained that we tried that in the past and we never received an answer. She informed me that she would have to discuss this with Montel to see if he would be willing to help our cause. She agreed that Fibromyalgia is debilitating and is a 'sister' disease to MS. However she could not tell me whether or not he would put us on his show. I asked her how many letters were received and she said 'carts'. She told me to tell every one that the campaign was 'extremely successful' and that I deserved a phone call. FOX TV is forwarding our mail to the National FOX station. Lisa Mancinni, from FOX TV, informed me she just did a story on FMS and can not do another one, but she was sympathetic to our plea for awareness."
  2. From Canada: Anne Trautman, one of our Million Letter Campaign supporters, just notified us that the officials from Canada received quite a few letters from the MLC. They were very pleased. Canada Pensions Plan, Edmonton, received all the mail!
  3. An MLC participant reported: "I wrote my letter to everyone that was suggested on the website, and more! This past Saturday, I received a 'Proclamation' from our Governor Ernie Fletcher from the Commonwealth of Kentucky proclaiming 'May 12, 2005 FIBROMYALGIA AWARENESS DAY in Kentucky'!!!!!!! The proclamation is VERY professional, signed and dated by our governor. My sister (and I) was/were *VERY* excited. Thank GOD! And thank you all [in KY] for your efforts, too!"
  4. An article appeared in the Town Times, Middlefield, Connecticut on Fibromyalgia Awareness Day, May 12, 2005 about fibromyalgia and one of our Million Letter Campaign workers, Shi Qkalokqua! www.towntimes.com/articles/2005/05/12/news/local_news/news21.txt
  5. Another report from Canada: "This is our local TV channel www.cfcn.ca - Click on Karen Owens video." This segment aired on May 12!
  6. From Pattie Caprio (May 17, 2005) - ATTORNEY MICHAEL J. HALLER, JR., who composed and mailed a powerful letter for the Million Letter Campaign top five addresses, phoned this morning. Attorney Haller has agreed to have copies of his letters sent to all the Senators who work on SSD laws along with our MLC letters. He informed me that he was just in Washington last week discussing these very issues with one of the Senators. He is willing to help us in any way he can with MLC. Anyone who lives in Omaha, Nebraska can contact him at 402-544-4773 for your attorney for your SSD case. He works with FMS/CFS/MCS/ME cases all the time.

If you participated in the campaign and receive a RESPONSE from ANY of the addresses, PLEASE CONTACT MLC FOUNDER, PATTIE CAPRIO, AT ivorycgd@noln.com IMMEDIATELY! They will be reported here on this website.

 

Million Letter Campaign: May 12, 2005

 

 

Read the absolute latest information at the MLC website.

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Notes:

If you hear of more Awareness Day or Advocacy Activities, please send them to me as soon as you possibly can & I'll do my best to get them on the site asap—mind you, I don't move fast so give me as much leeway as possible! <g>

email me here!


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