Awareness Day (May 12th) Activities 2005

Awareness Day Activities 2005

Results of the MLC

May 1st Million Letter Campaign

A plan has been proposed that could have a major impact on the media and the world before the next International FM/ME/CFS Awareness Day on May 12, 2005. The goal is to have as many patients as possible send letters on May 1, 2005, to five places to gain national recognition: The White House (First Lady), ABC News (20/20), Montel Williams (who has MS), 60 Minutes (Mike Wallace has had CFIDS), Fox News.

Advocacy Activities Page

Main Advocacy & Awareness Page

We are hoping that a MILLION letters will be sent! Those who want to participate need to write only one letter and just change the address at the top to go to each of the recipients.

Letters need to be ONE PAGE ONLY. We all need to send the letters out on the same day as everyone else so that this gets noticed. The date we are aiming for is MAY 1, 2005, so that the letters are received at the same time and just prior to Awareness Day on May 12. The more letters sent, the better the chance will be for all of us.

Please remember that we don't want to dilute the quantity of our letters to individual recipients, so please send them to the 5 addresses listed. Oprah Winfrey is not included in this list, because she no longer accepts unsolicited input for her shows. (And she did an excellent piece on CFS with a mother and daughter who were both affected.)

Mail your letter to:

1. The First Lady, White House 1600 Pennsylvania Ave., NW Washington, DC 20500	2. Story Editor 20/20, ABC News 147 Columbus Ave., 10th Floor New York, NY 10023	3. FOX News 5151 Wisconsin Ave., NW Washington, DC 20016
4. Story Editor 60 Minutes, CBS News 524 West 57th St. New York, NY 10019	5. Senior Supervising Producer Montel Williams 433 West 53rd St. New York, NY 10019

Your 1-page letter should say:

Name
Location (City, State and/or Country)
Occupation or achievements prior to FMS/CFIDS
How long you’ve been ill
Symptoms
How this illness has affected your career, finances, relationships, family, etc.
What you are asking for: e.g., recognition of this illness, for doctors, insurance companies, & disability carriers to take FMS/CFIDS seriously, for understanding from family and friends, for money to be spent on research for a cure, for media coverage, or whatever else comes to mind.

I don't know of a better way to accomplish our goal of FMS/CFIDS Awareness! It will take just a little effort from each of us in telling our own unique FMS/CFIDS story in "one page" form and sending it to people who have power and influence in our society. Remember, we are doing this not just for ourselves, but for millions of sufferers worldwide.

Dominie Bush
dom (at) fms-help (dot) com

P.S. Million Letter Campaign T-SHIRTS & SWEATSHIRTS are great for individuals or support groups! (See the logo on the shirts at the top of the page at: www.fms-help.com/letter.htm)

Posted on yahoogroups list: CFS-FM-DFW, January 4, 2005

Notes:

If you hear of more Awareness Day or Advocacy Activities, please send them to me as soon as you possibly can & I'll do my best to get them on the site asap—mind you, I don't move fast so give me as much leeway as possible! <g>

Easy search for the Amazon.com site. Check out their books and music.

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