Awareness Activities for 2000

Table of Contents

Our support group recognized Awareness Day with a flurry of activities before, during, and after May 12th. We were privileged to host two national speakers: Myra Preston, PhD, and Jacob Teitelbaum, MD. 

Members were encouraged to write their senators and representatives and offered packets with sample letters. Library displays using materials on CFIDS and FMS were set up in thirteen metroplex libraries. Information tables at area hospitals were set up in Ft. Worth and Bedford by Dave Lovelace, Barbara Branyon, Carol Sieverling and Deborah Bryant. Brian Couch requested and received an official proclamation of May 12 as Awareness Day from the City of Dallas, and Nancy Jackson received one from Southlake. Susan Roberts sent a "letter to the editor" concerning CFS/FM to the Ft. Worth Star-Telegram, published on May 7th. Carol Sieverling, Deborah Bryant and Diane Provenza attended Lobby Days in Washington DC. Many thanks to all those who participated in these various activities.

July 28-30 A conference on Orthostatic Intolerance will be held in Minneapolis, Minnesota . See www.ndrf.org or phone 651-267-0525. 

August 18-20 The Common Cause Research Foundation Conference is being held in Rochester, NY. This foundation encompasses CFS, FM, MCS, GWS, MS, Lyme, Lupus, etc. Speakers include Nicholson, Scott, Knox, Berg, Coccetto, and others. For information see www.co-cure.org, click on archives, go to June week 4, and look under "NOTICES". 

October 23-24 The "State of the Science" meeting on CFS will be in Rosslyn, VA. A link can be found at www.co-cure.org under "New to the Web Site". 

November 17-19 The Canadian First National Symposium for ME/FM and Environmental Multiple Chemical Sensitivities will be held in Ottowa. Call 613-829-6667 or visit www3.sympatico.ca/me-fm.action (click on conference). 

January 26-29, 2001 The Fifth International American Association for CFS (AACFS) Research, Clinical and Patient Conferences will be held in Seattle, Washington. Information on speakers, schedule and registration can be found at www.aacfs.org. 

Note: travel expenses and registration fees for a conference can be deductible. Hotel and meals are not.

Last September the National Fibromyalgia Research Association hosted an outstanding conference. The abstracts of the presentations are now available at www.teleport.com/~nfra/Subgroups.htm. Speakers included Rosner (Chiari, NMH), Heffez (neurological deficits), Milhorat (Chiari, Substance P), Russell (pain amplification mechanisms), Staud (pain management), and Yunus (genetic aspects of FMS).

Transcripts of two chats concerning FMS are available at WebMD. "Fibromyalgia with Oscar Gluck, MD" covers definition, diagnosis, possible causes, treatment, and sleep. It's at www.my.webmd.com/con-tent/asset/chat_transcript.526150 (link may be available only for members). The second chat is "Fibromyalgia: What it is and how to treat it with Michael Henry Joseph, M.D. You can find it at ww.my.webmd.com/content/article/1700.50312 (link may be available only for members).

Our CFIDS/FMS support group won the top national award given by The CFIDS Association of America for a group's activities during May Awareness Month.

Congratulations to all of us! Best of all, the prize includes $150 of our choice of material from the CFIDS Association of America.

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