Media Bites Locally, The Mesquite News ran a story, Silent Agony, on March 15th about the new FMS support group there. The Rowlett newspaper also had a recent feature on FM that mentioned our support group. Science Magazine's January 7th issue covered the CDC's fiscal mismanagement of CFS funds. USA Today published an article about CFS on January 13th entitled "Real Life with a Phantom Disease". On February 2nd the CDC diversion of funds made the front page of The Washington Post. The Post also ran another story on the CDC mismanagement February 9th. The reassignment of Brian Mahy (head of the CDC division over-seeing CFS) was covered by the Atlanta Journal and Constitution ("CDC Chief's Removal of Division Head Lauded") and The Washing-ton Post ("CDC director plans audits and overhaul") on February 11. The New York Times ran an article on February 21 about the high incidence rate of CFS in Japan. On March 10th the program 20/20 aired a segment on Neurosurgery for CFS and FM. On February 15 King 5 NEWS in Seattle, WA aired a story on Mycoplasma and CFS. The PBS show "Healthweek" aired a feature on Chiari surgery for CFIDS and FM patients the last week of January.
Laughter Is The Best Medicine Jean has developed a program of strenuous exercise anyone can do:
Beating around the bush
Teitelbaum, Cheny and Preston Videos Available Our support group is still selling professionally made video tapes of Dr. Paul Cheney's three-hour seminar held in Irving in May of 1999. It covers the patho-physiology, diagnosis and treatment of CFS. We will also be selling videotapes of Dr. Myra Preston's seminar on CFIDS and Cognitive Dysfunction (April 2000), and Dr. Jacob Teitelbaum's seminar on Treatment of CFS and FM, (May 2000). The tape of Teitelbaum's seminar will only be available through our support group (at our significantly discounted price) until November 6th, 2000. All three tapes are $15 each, checks payable to the CFS/FM Support Group of DFW, mail to 513 Janann St; Euless, TX 76039.
New Mesquite Group Planning FMS Retreat Pat Charlton began a new FMS group in Mesquite last fall, and they are off to a great start! They are planning an FMS retreat in late May or early June at the Peace Valley Retreat Center. It's located in Caddo Gap, Arkansas, the Ouachita mountain area. Rooms will be $65 per night, or less. For more info contact Pat at 972 270-1984 or pac53@airmail.net.
Moms In Touch If you are raising children or considering having children and want to exchange information with other mothers with CFIDS, contact the leader of Moms in Touch: Kathy Herman, 1165 Elmwood Road, Mayfield Heights, OH 44124; phone 440 605-1609.
In Memory: Dr. Edmund Tyska
On March 10, Dr. Edmund Tyska passed away at his home. He had recently informed his patients of his retirement. For years, he was one of a limited number of doctors in this area who recognized CFIDS as a serious illness and provided medical treatment to patients. Our condolences to his family, friends and patients.
Funds for CFIDS Physician Education!
Curriculum to train medical professionals to recognize, diagnosis and treat CFIDS has been developed by the CFIDS Association of America and the Illinois Area Health Education Center. On February 9, Kim Kenney of the CAA met with representatives of the CDC and the Illinois AHEC to discuss its funding and implementation. The CDC strongly commended the group's work and agreed to fully fund a grant to test and implement the curriculum through a train-the-trainer series of workshops. Since education of healthcare providers has long been a top priority for many, this is very welcome news! Thanks to the CFIDS Association of America for this information. You can reach them at 704 365-2343 or by email at cfids@cfids.org.
Thanks Again! Many thanks to the amazing women at Emmanuel Presbyterian Church who so willingly take care of the folding, stapling, and labeling of this newsletter. Many thanks also to Harris Methodist HEB Hospital for printing and mailing of paper version newsletter. Without you this publication would not be possible!
Documentary Film on CFIDS After three years, Kim Snyder's film "I Remember Me" is almost complete. A recent screening at the Museum of Modern Art gave 40 members of the film industry the opportunity to view the film, raising awareness about CFS. The initial feedback was very positive. Most attendees expressed shock at the magnitude of CFIDS as a major public health problem. Most agreed that the scenes involving an individual who has been bedridden for more than two years were the most compelling. Kim plans to put the final touches on the film (contingent on funding), and submit it to several film festivals with the hope of wider distribution. She also hopes to launch a campaign to distribute the film for educational purposes. Active in the film industry, Kim was the Associate Producer of the Oscar winning short film Trevor in 1994. When CFS struck, she was assisting in the production of Home For the Holidays, directed by Jodie Foster.
For Your Bookshelf All of the following were recommended by members at various meetings. Osler's Web: a classic CFS text that was $29 is now $4.50 at amazon.com! Author Hillary Johnson spent nine years inter-viewing hundreds of patients, doctors and researchers to produce this well-documented in-depth history of the medical establishmentÌs response to CFS. The Virus Within: Nicholas Regush, a reporter for ABC, has written about the role of HHV6 in AIDS, MS and CFS. A March 5th interview is available at http:// artbell.com/audio.html, 1 hour 26 minutes into the audio. A chat with him is at www. folkarts.com/ townhall/2000319.htm. A review is at www.chronic-relief.com Clean and Green: The Complete Guide to Nontoxic and Environ-mentally Safe Housekeeping by Annie Berthold-Bond. She lists 485 ways to clean polish, disinfect, deodorize, launder, and remove stains without harming yourself or the environment. Home Safe Home: Protecting Yourself and Your Family from Everyday Toxics and Harmful Household Products in the Home, by Debra Lynn Dadd. Covers air, water, food, textiles, pest control, cleaning, beauty, home furnish-ings, and much more. The Cup of Our Life: A Guide for Spiritual Growth, by Joyce Rupp. Rupp explores how the cup is a rich symbol of life, with its emptiness and fullness, its brokenness and flaws, and all of its blessings. Prayer and Our Bodies, A Primer for Integrating the Spiritual & the Physical, by Flora Slosson Wuellner. Includes guided meditations. Other titles by the same author that are highly recommended include Prayer, Stress and Our Inner Wounds and Prayer, Fear and Our Powers. What Is God Like, a collection of powerful and moving poems by James Dillet Freeman, the poet laureate of the Unity Church.
The DFW Lighthouse Credits Published quarterly, the DFW Lighthouse strives to inform its members
and the public about a variety of topics related to chronic Fatigue Syndrome
and Fibromyalgia and provide information on advocacy issues. The CFS/FM
Support Group of DFW does not endorse particular products or services,
and the ideas expressed the in the DFW Lighthouse are strictly those of
the authors or the quoted individuals. The CFS/FM Support Group of DFW,
and the DFW Lighthouse assume no liability for any medical treatment or
other activity undertaken by readers. For any medical advice, consult your
health-care provider.
Submissions for the DFW Lighthouse may be sent electronically to Carol. We reserve the right to edit all submissions. You must have permission before reproducing any material from the DFW Lighthouse. This may be obtained by contacting Carol Sieverling at 513 Janann Street, Euless TX 76039, 817-283-1115, or via email. For any computer-related problems or services, design, layout, editing or writing services (preferably for hire, but pro-bono services will be considered), contact LJ Fidler. Copyright © 2000 by The CFS/FM Support Group of DFW, www.dfwcfids.org/. All rights reserved.
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